Perspectives on PAH
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Hear from real people living with PAH
You are not alone! Pulmonary arterial hypertension is a rare and complex disease, but you can take comfort in knowing you are not the only one who is experiencing it. The PAH Initiative community is here to help with articles and videos featuring caregivers and real people with PAH, who share their perspectives on getting diagnosed, finding a PAH specialist, adjusting their treatment plans, and finding hope and inspiration along the way.
Lauren, PAH Initiative Ambassador
Ambassador spotlight - Peggy
Learn how Peggy renewed her competitive spirit after her PAH diagnosis and how she won't let an oxygen tank define her.
Read ArticleWhat PAH risk status means to me
How has knowing their risk status helped Lauren and Karen better understand if their treatment plan is working?
Watch VideoSelf-Care and healthy living with PAH
Living with PAH can be a big adjustment and taking care of yourself can make a big difference. But where do you start?
Watch VideoCaregiver corner - Jane
Get to know Jane, who cares for a daughter living with PAH, in a conversation about balancing self-care and caregiving.
Read ArticleAmbassador spotlight - Karen
Learn how Karen reclaimed control of her body—and life—after her PAH diagnosis in an inspiring story of perseverance.
Read ArticleAdvice from PAH Initiative Ambassadors
Hear from people who’ve been there—PAH Initiative Ambassadors share their best tips for tracking life’s everyday obstacles.
Read ArticleWhat I wish I knew about PAH
Laura and Joanne have come a long way since diagnosis. Listen as they share the tips they wish they could have known sooner.
Watch VideoWorking with a PAH expert
Why is it important to find a PAH expert? Hear from other people with PAH as they share their thoughts on the benefits.
Watch VideoReaching out & staying connected
You are not alone! Watch this video to find out how Denise, Karen, and Lauren stay connected with their communities.
Watch VideoGetting motivated again
Living with PAH can cause a range of emotions. See how Denise, Karen, and Lauren have found ways to stay positive and motivated.
Watch VideoPH Awareness Month
Watch this short video to find out what PH Awareness means to people with PAH who are just like you.
Watch Video